RUSP Roundtable – Feb 2016 Working Agenda v1
| Rockville, MD – Wed, Feb 10th, 2016 | DRAFT 1/6/2016 | |
| 9:00 | Welcome, roundtable guidelines | Dean Suhr, President, MLD Foundation |
| 9:10 | Attendee self-introductions | all |
| 9:30 | Recap of August 2015 RUSP | Dean Suhr |
| 9:45 | Impact of RUSP Roundtable – discussion | all |
| 10:15 | coffee stretch | |
| Perspectives, open discussion, new topics | ||
| 10:30 | Integrated health & payor perspective | tbd |
| 10:45 | State Overview – Uniformity & Differences | invited – APHL |
| 11:00 | State resources – current and future | tbd |
| 11:15 | open discussion, new topics | |
| 11:50 | Focusing & Adjusting Afternoon Agenda | all |
| 12:00 | lunch | |
| Roundtable – deeper dive & discussion | ||
| 1:00 | Deep Dive Session 1 – Genomics & Secondary Path / Alternate Testing | all |
| 2:15 | Deep Dive Session 2 – Consent, Common Rule, NBSSL Section 12, DBS Storage and access for future research | all |
| 3:30 | coffee stretch | |
| 3:45 | Deep Dive Session 3 – Measuring Quality of Life | all |
| 4:50 | Recap, conclusions, and next steps | Dean Suhr |
| 5:00 | Adjourn | |