February 2016 Agenda

RUSP Roundtable – Feb 2016 Working Agenda v1

  Rockville, MD – Wed, Feb 10th, 2016 DRAFT 1/6/2016
     
9:00 Welcome, roundtable guidelines Dean Suhr, President, MLD Foundation
9:10 Attendee self-introductions all
9:30 Recap of August 2015 RUSP Dean Suhr
9:45 Impact of RUSP Roundtable – discussion all
10:15 coffee stretch  
  Perspectives, open discussion, new topics
10:30 Integrated health & payor perspective tbd
10:45 State Overview – Uniformity & Differences invited – APHL
11:00 State resources – current and future tbd
11:15 open discussion, new topics  
11:50 Focusing & Adjusting Afternoon Agenda all
12:00 lunch  
  Roundtable – deeper dive & discussion  
1:00 Deep Dive Session 1 – Genomics & Secondary Path / Alternate Testing all
2:15 Deep Dive Session 2 – Consent, Common Rule, NBSSL Section 12, DBS Storage and access for future research all
3:30 coffee stretch  
3:45 Deep Dive Session 3 – Measuring Quality of Life all
4:50 Recap, conclusions, and next steps Dean Suhr
5:00 Adjourn  

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