Next Meeting

The next RUSP Roundtable is tentatively scheduled for Wednesday, May 13th, 2020, the day just before the ACHDNC meeting on the 14th and 15th.  Check back for meeting confirmation and agenda details. If you are interested in being kept updated on the RUSP Roundtable and/or participating, please contact Dean Suhr, President, MLD Foundation +1 503-656-4808 or


The purpose of the RUSP Roundtable is to create an open well-informed space to share perspectives and insights from key experts in the NBS space, expand the common knowledge base, and identify opportunities for both coalition building and collaborations across sectors to innovate and accelerate programs to make NBS more robust and equitable.

Inaugural Attendees

The inaugural RUSP Roundtable in August 2015 convened 30 newborn screening (NBS) opinion leaders from academia, governmental agencies, clinical and social research, public health, private industry, and patient advocacy in a unique, open, independent forum to speak with candor about current newborn screening challenges, concerns, and developments with an eye toward the future of NBS. …

Inaugural Attendees Read More »