NIH Rare Disease Day 2017 Poster

You can download a poster presented at the NIH’s 2017 Rare Disease Day event here:  NIH RDD – updated Feb 2017
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February 2016 Agenda

RUSP Roundtable – Feb 2016 Working Agenda v1   Rockville, MD – Wed, Feb 10th, 2016 DRAFT 1/6/2016       9:00 Welcome, roundtable guidelines Dean Suhr, President, MLD Foundation 9:10 Attendee self-introductions all 9:30 Recap of August 2015 RUSP Dean Suhr 9:45 Impact of RUSP Roundtable – discussion all 10:15 coffee stretch     Perspectives, open...
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