RUSP Roundtable


The purpose of the RUSP Roundtables is to create an open well-informed space to share perspectives and insights from key experts in the NBS space, expand the common knowledge base, and identify opportunities for both coalition building and collaborations across sectors to innovate and accelerate programs to make NBS more robust and equitable.


The inaugural RUSP Roundtable in August 2015 convened 30 newborn screening (NBS) opinion leaders from academia, governmental agencies, clinical and social research, public health, private industry, and patient advocacy in a unique, open, independent forum to speak with candor about current newborn screening challenges, concerns, and developments with an eye toward the future of NBS. The discussion started with the RUSP criteria but quickly broadened to include a multitude of NBS issues.

Please see the executive summary of the our first meeting here.